Strategic partnerships are at the cornerstone of CareEpilepsy’s mission to transform the lives of those affected by epilepsy. Through collaboration with national and international stakeholders, we create meaningful impact in healthcare, awareness, and patient support. Our Strategic Partnerships Initiative is designed to influence policies, enhance services, and ultimately save lives by ensuring epilepsy receives the attention it deserves.
Nationally, we work closely with the Ethiopian Ministry of Health, the Association of Ethiopian Neurologists, and various governmental and non-governmental organizations. These partnerships have enabled us to engage dedicated national neurologists and psychiatrists who provide critical emergency care and see patients on a monthly basis, ensuring consistent treatment and guidance.
On the international stage, CareEpilepsy collaborates with the International Bureau for Epilepsy and Ethiopian Medical Diaspora Networks, allowing us to bring in international neurologists for clinical consultations and specialized training. This ensures that healthcare professionals in Ethiopia receive the latest knowledge and skills to better manage epilepsy care. Additionally, our youth volunteers play a vital role in community-based awareness projects, helping to reduce stigma and educate the public about epilepsy through various initiatives.
Recognizing the often-overlooked connection between epilepsy and oral health, we have pioneered a unique partnership with the Ethiopian National Dental Association to provide free dental care for our patients. Many individuals with epilepsy suffer from gum disease due to older-generation epilepsy medications, which remain widely used in Ethiopia. Additionally, seizure-related trauma often results in broken teeth, ulcers, and mouth infections. By integrating dental care into our services, we address this critical yet neglected aspect of epilepsy treatment, ensuring that our patients receive comprehensive care beyond neurological support. Through these strategic partnerships, we continue to expand our reach, enhance medical training, and improve the overall quality of life for people living with epilepsy.
Key aspects of our partnership work include:
- Empowering Voices: Encouraging individuals with epilepsy to advocate for their needs.
- Policy Advocacy: Influencing government policies and practices targeting primary healthcare providers, the Ministry of Health, local leaders, non-state actors, state actors, and key health stakeholders.
- Partnerships: Engaging with neurologists, private entities, community associations, and charities to address epilepsy needs.
- Community Engagement: Working with community leaders and traditional healers to build support and understanding.
- International Collaboration: Partnering with global organizations to amplify our advocacy efforts.
ለታማሚዎች መብት መሟገት እና ድርጅታዊ ግንኙነቶችን ማዳበር
ኬርኤፕለፕሲ ኢትዮጵያ የሚጥል ህመም ታማሚዎች ላይ በሚደርሰው ማንኛውም ጉዳት ዙሪያ ድምፃቸው እንዲሰማና ሰብዓዊ መብታቸው እንዲከበር ከህብረተሰቡ አባላት ጋር በመሆን ትክክለኛ መሠረት ያደረገ አቀራረብን እና ድጋፍን ከፍ በማድረግ ጠንካራ ተሟጋችነቱን አሳይቷል፡፡
ድጋፍ ሰጭ ቡድን (የህሙማን ተወካዮች) መመስረት
የችግሩ ባለቤት የሆኑትን የሚጥል ህመም ህሙማንና ቤተሰቦቻቸውን ተሳትፎ ለማጎልበት፣ ታማሚዎች በአገልግሎት ሰጭ ተቋማት በመድሃኒት አቅርቦትና በጤና ባለሞያዎች የሚገጥማቸዉን የአሰራር ችግሮች እንዲፈቱ ለመስራትና በሚጥል ህመም ላይ ያለውን ተፅዕኖ ለመቀየር እንዲሁም ቤት ለቤት በመንቀሳቀስ ምክክሮችንና ግንዛቤዎችን ለመስጠት ድርጅቱ ህሙማንና ቤተሰቦቻቸውን አሰባስቦ ትርጉም ያለው ተጨባጭ ለዉጥ ለማምጣት እንቅስቃሴ ማድረግ የሚችል፥ መርሃ ግብር የሚያሰናዳ ድጋፍ ሰጭ ቡድን (የህሙማን ተወካዮች ኮሚቴ) ጥቅምት 25/2010 እንዲቋቋም አድርጓል።
ከተለያዩ አጋር ድርጅቶች ጋር መሥራት
በኢትዮጵያ በሚጥል ህመም ዙሪያ ላሉ ችግሮች መፍትሄዎቹ በጣም የተወሳሰቡና አንድ ድርጅት ብቻዉን ሊፈታው የማይቻል ነው፡፡ ስለሆነም ኬርኤፕለፕሲ ኢትዮጵያ ዘላቂ የልማት ግቦችን ለማሳካት፣ አዳዲስ ሀሳቦችን ለማመንጨት እና መፍትሄዎችን ለማምጣት ከተለያዩ አጋር ድርጅቶች፣ ከሌሎች መንግስታዊ ካልሆኑ ድርጅቶች፣ በበጎ አድራጎት አገልግሎት ላይ ከሚሳተፉ በጎ ፈቃደኞች እና ጉዳዩ ከሚመለከታቸው ባለድርሻ አካላት ጋር ሁልጊዜም ግንኙነቱን አጠናክሮ በትብብር ይሠራል፡፡ ይህንንም የምናሳካበት ስትራተጂ፡-
ትኩረት ለሚጥል ህመም እንዲሰጥ እና ለህሙማኑ አስፈላጊው ድጋፍ እንዲደረግ ከህመሙ ተጠቂዎች እና ከህመምተኛዉ ቤተሰቦች ጋር በመተባበር፣የሚጥል ህመም ህክምና እንዲስፋፋ፣ በበቂ ባለሙያዎች እንዲሰጥና የመድሀኒት አቅርቦት ችግር እንዲቀረፍ ከፌዴራል ጤና ሚኒስቴር፣ ከአዲስ አበባ ጤና ቢሮ፣ ከክፍለ ከተማና ወረዳ ጤና ጽ/ቤቶች፣ ከሆስፒታሎች፣ ከክልል ጤና ቢሮ፣ በዞን እና በወረዳ ደረጃ ከሚገኙ ጤና ተቋማት ጋር ሰፊ ግንኙነት በመፍጠር እና በጋራ በመስራት፣በሚጥል ህመም ላይ ያለዉ የተሳሳተ አመለካከት እንዲለወጥ የቅስቀሳ ስራዎች፣ ስልጠናና ትምህርት ለተለያዩ አጋር ድርጅቶች ለምሳሌ የሲቪል ማህበረሰብ ድርጅቶች፣ የማህበረሰብ አቀፍ ተቋማት፣ የኢትዮጵያ የነርቭ ሐኪሞች ማህበር፣ የመገናኛ ብዙሃን፣ ዩኒቨርሲቲዎች፣ የግል ድርጅቶች፣ ቤተ እምነቶች፣ መገናኛ ብዙሀን እና ለተለያዩ የህብረተሰብ ክፍሎች በመስጠት ነው፡፡