Save More Lives Like Nejat Nuredin
"You might wonder why I want you to spread epilepsy awareness when you don't have epilepsy. At one point, neither did I."
CareEpilepsy Ethiopia
This video tells the story of CareEpilepsy Ethiopia, a charity in Ethiopia that stands beside people living with epilepsy. Behind every clinic visit, every medicine provided, and every family we support is a story of struggle, resilience, and hope. We fight stigma in schools and communities, we listen to families who often feel forgotten, and we push for change so that epilepsy is no longer ignored. This is not just about treatment—it’s about giving people the dignity to live without fear and the chance to be seen, heard, and included.
About Us
CareEpilepsy Ethiopia is a pioneering non-profit dedicated to transforming epilepsy care in Ethiopia. Founded in 2015 by Enat Yewnetu, a global health advocate, public health expert, and person living with epilepsy.
The organisation was born from lived experience and a powerful mission: to make epilepsy visible, treatable, and prioritised in a health system that too often overlooks it. We deliver and facilitate vital services including clinical care, anti-seizure medications, EEG and MRI diagnostics, mental health support, and wellbeing assistance.
Our wellbeing program provides peer support, home visits, transportation assistance, school reintegration, and, when available, essentials such as food and clothing for patients in dire need, ensuring support extends beyond the clinic to the most vulnerable.
The organisation was born from lived experience and a powerful mission: to make epilepsy visible, treatable, and prioritised in a health system that too often overlooks it. We deliver and facilitate vital services including clinical care, anti-seizure medications, EEG and MRI diagnostics, mental health support, and wellbeing assistance.
Our wellbeing program provides peer support, home visits, transportation assistance, school reintegration, and, when available, essentials such as food and clothing for patients in dire need, ensuring support extends beyond the clinic to the most vulnerable.
our mission & leadership
Mission
We exist to radically improve the quality of life of people with epilepsy and associated disabilities and change perceptions of epilepsy in the community.
Our Vision
We envision a future where people with epilepsy are protected, respected, live free from discrimination and stigma, and given the opportunity to realise their full potential.
Our Goal
Our goal is to facilitate early epilepsy diagnosis and treatment; train and equip primary health care providers to deliver care; raise awareness; improve patients’ emotional, social, and economic wellbeing; strengthen and expand partnerships; and advocate for epilepsy-responsive and people-centred policies.
National Advisory Board
There are four members of the National Advisory Board comprised of a neurologist, a Clinical Nurse Specialist, a Financial Advisor, and a Business Manager who are responsible for supporting and monitoring our progress towards meeting the set objectives.
Patient Advisory Committee
There are five members of the Patient Advisory Committee who advocates for epilepsy care in Ethiopia through mobilizing patients and communities.
Operational Team
There are six members of the Operational Team who participate in the day-to-day activities of the charity.
How It All Started
Thirty years ago, I was thrust into a world of uncertainty when seizures became a constant companion in my life. The unpredictable storms of generalized tonic-clonic seizures left me battered and bruised, both physically and emotionally. From nearly losing my unborn child to grappling with memory challenges, my journey with epilepsy was marked by pain, embarrassment, and silent suffering.
For years, I questioned why epilepsy chose me, enduring physical injuries, hospitalizations, and the shadow of a shorter life expectancy.
The turning point arrived 15 years ago when I confronted a choice: let epilepsy define me, or rise above its challenges. Determined not to be defeated, I embraced my reality and decided that epilepsy would not shackle my dreams.
For years, I questioned why epilepsy chose me, enduring physical injuries, hospitalizations, and the shadow of a shorter life expectancy.
The turning point arrived 15 years ago when I confronted a choice: let epilepsy define me, or rise above its challenges. Determined not to be defeated, I embraced my reality and decided that epilepsy would not shackle my dreams.
what we do
We also deliver professional training for nurses, health officers, and educators, and run outreach programs that challenge stigma and raise public awareness.
Beyond care, we drive systemic change. Through partnerships with the Ministry of Health, WHO, IBE, and members of the Ethiopian diaspora who are specialists in neurology and epilepsy, we strengthen national capacity through expert-led training, research collaboration, and telemedicine services, ensuring epilepsy is finally recognised as a public health priority in Ethiopia.
Beyond care, we drive systemic change. Through partnerships with the Ministry of Health, WHO, IBE, and members of the Ethiopian diaspora who are specialists in neurology and epilepsy, we strengthen national capacity through expert-led training, research collaboration, and telemedicine services, ensuring epilepsy is finally recognised as a public health priority in Ethiopia.
Epilepsy In Ethiopia
Join us in this compelling video as we showcase the inspirational journey of CareEpilepsy Ethiopia, an organization dedicated to raising awareness and providing support for people living with epilepsy in Ethiopia.
Discover the impactful stories of individuals who have benefited from our programs, the challenges faced, and the remarkable progress made in epilepsy care and advocacy.Watch the video to learn more about our work and how you can support our mission to ensure that anyone with epilepsy can fulfill their potential with the right support and medical care.
Discover the impactful stories of individuals who have benefited from our programs, the challenges faced, and the remarkable progress made in epilepsy care and advocacy.Watch the video to learn more about our work and how you can support our mission to ensure that anyone with epilepsy can fulfill their potential with the right support and medical care.
Epilepsy First Aid in Amharic Language
Join us in this compelling video as we showcase the inspirational journey of CareEpilepsy Ethiopia, an organization dedicated to raising awareness and providing support for people living with epilepsy in Ethiopia.
Discover the impactful stories of individuals who have benefited from our programs, the challenges faced, and the remarkable progress made in epilepsy care and advocacy.Watch the video to learn more about our work and how you can support our mission to ensure that anyone with epilepsy can fulfill their potential with the right support and medical care.
Discover the impactful stories of individuals who have benefited from our programs, the challenges faced, and the remarkable progress made in epilepsy care and advocacy.Watch the video to learn more about our work and how you can support our mission to ensure that anyone with epilepsy can fulfill their potential with the right support and medical care.
Our videos are more than just content, they’re a gateway to understanding epilepsy. Dive into educational insights, break the stigma, and empower lives.
Watch, learn, and share!
Watch, learn, and share!
partners
contact us
- Welansa and Zeleke Building, Addis Ababa, Ethiopia
- 📍 Our Location: Behind Welansa & Zeleke Building, near NOC Gas Station, Megenagna (around Lem Hotel) Yeka Sub-City, Woreda 08, Addis Ababa
- Mon-Fri - 08:30-5:30